Monday, September 14, 2009

An information-less update...

I am doing an update even though we haven't learned much since the last one.  Sean was released on Saturday (a week ago) we waited for test results all last week.  The PET scan came back negative for cancer, which is good and the lymph node test came back normal.  We were happy with both, yet we are to the point we want something to show as positive - although cancer isn't great, we were looking at it as an answer and knowing that treatment could be done and he could be fixed.  So we are basically still at square one.  Its still pointing to an autoimmune disorder, Sean's thyroid (or lack there of) levels are out of whack now so they are trying out different medication levels for him there.  Even though that's just a tiny piece of the problem we are hoping that once that is under control his nausea could possibly go away.  

So the plan from here is to go back out for a doctor's appointment tomorrow morning.  They are going to start immunoglobulin treatments on Wednesday and Thursday and we are hoping that he notices some change from that.  I have read really good success stories from the treatments so our hopes are high that this might be the fix.  We are both relieved that we are least going to start trying something! We just are praying he responds to the treatment and we will go from there for a diagnosis.  So that's that - not too informative, but an update.  Once again hope to have good news in the upcoming weeks!!

4 comments:

Isaak and Jackie said...

I am happy to hear that the tests were negative although I know the feeling of just wanting a diagnosis so that progress can be made. We continue to pray for you and wish the best. I was checking your blog daily to see an update, thanks for taking the time.

Shanna said...

I am so sorry there is still no answer! My brother in law is going through similar symptoms and they too cannot find an answer. He is going out to the U tomorrow for more testing as well. I think about you guys often! :)

Anonymous said...

You both are in our thoughts and prayers. Let us know if you need anything!! Just know that we love you and are thinking about you guys and your precious baby girl!! Love Shanna, Bobby and Kids

nancy said...

I am so sorry. We will keep you in our prayers. Love you guys