Another update on Sean...

So still no diagnosis for Sean. We were out at the U again on Thursday for a doctors appointment and yet ANOTHER biopsy. This time they biopsied Sean's lymph node in his arm pit, he is seriously a trooper. He doesn't even flinch when they say what they are going to do to him, I would be a complete crying mess if I was going through everything he has had to...I can't believe how strong he has been through all this. Anyways they biopsied the lymph node looking for possibly lymphoma cancer. It of course came back inconclusive (I am growing to HATE that word) with some information but not everything they needed so he is now scheduled to be admitted tomorrow morning, hopefully just until Wednesday but you never know anymore! They don't think that its lymphoma cancer but are worried about other forms of cancer. So where we stand now is they ruled out muscular dystrophy YAY!, which is such a relief...an autoimmune disorder is still a possibility, but now they have added cancer into the possibilities as well. We get one thing ruled out and another put in the game. We just want a diagnosis fast, Sean feels so horrible any relief would be great. Keep him in your prayers, again I am hoping to be able to post my next weekly update with some good news!!

On a positive note we were able to get our nursery set up this weekend. Kind of a reality check for us, everytime we walk by the room we both stop and look at it for a minute. What was an exercise room Friday night is now a full blown nursery. It turned out really cute, we are just waiting for the rocker to come in and we will be set nursery wise. Still lots of other things to get, crazy to think that I will be 6 months along next week.

Update on Sean

So its been another crazy week.  We went out to Salt Lake on Tuesday to get the results from the muscle biopsy and hopefully a diagnosis - but the muscle biopsy came back inconclusive.  So from there we did more blood tests and an EKG Tuesday, went back out Thursday for a CT scan, MRI and doctor appointment -which included a biopsy of Sean's knuckle, and then Friday Sean got yet another muscle biopsy, this time a big one from his thigh.  Poor guy! he has been cut up and put on so many IV's these pas 3 weeks, but he  is handling it all like a champ.

So still no news, he is continuing to loose weight and getting weaker and weaker by the day.  We are hoping that with all the tests ran this week that next week we may hear some news.  The nice thing is this week they are leading more towards an autoimmune disorder and away from dystrophy but nothing can be ruled out and we don't dare get our hopes up yet.  The possible autoimmune diseases are still horrible, but so much better than muscular dystrophy. Thanks again for all of your calls and comments....still hoping for good news to come!

Sean...

Sean and I have had an adventureous past week - many of you have called and its been a little too crazy to return the calls, so I figured it may be best to post a little something here. Sean has had severe muscle weakness and weight loss over the past few months, we both knew something was going on but he had his annual appointment for his thyroid so we put it off hoping it was somehow tied to it. We were hoping for a quick fix but it is in no way tied to the thyroid. We then started setting appointments with various specialists but figured we would start with a internal medicine doctor here is Roosevelt. Last Tuesday we had our appointment, he ran his blood tests and we heard back around 10:00 that night that his muscle enzymes were crazy high (30,000 to be exact) and something was attacking his muscles. That doctor then called Sean's other doctor in Provo - who then at 10:30 at night called us in a complete frantic saying we needed to get to the emergency room ASAP so he didn't go into kidney failure. So we drove to Provo - got to the emergency room at 12:30 am and started a crazy journey. Sean was admitted there and then transferred to the University of Utah Tuesday and they kept him until Friday. He somehow conned them into letting him go even though they wanted him to stay until this Tuesday. We left Friday night and went back out this past Tuesday so they could do a muscle biopsy, so he is now recovering from that. We had another follow up appointment in Roosevelt yesterday, some more tests scheduled for today, and then hopefully a diagnosis with an appointment at the U on Tuesday.

None of the options they have given us are too good, but we still have a crazy amount of hope that it could possibly be something that won't change his lifestyle for forever. They are leaning towards muscular dystrophy, but there are still some other options out there; its pretty sad that we are hoping for an autoimmune disease because there is medication for it - whereas with muscular dystrophy there is nothing they can do. Life can change so fast, we have learned to never take your health for granted. We are so thankful for all of those that have been thinking and praying for him....we really do hope to have some good news next week. I know this is not the best way of informing everyone and/or thanking everyone for the calls but our lives have gone past crazy. Keep him in your thoughts...thank you!!