Sean...

Sean and I have had an adventureous past week - many of you have called and its been a little too crazy to return the calls, so I figured it may be best to post a little something here. Sean has had severe muscle weakness and weight loss over the past few months, we both knew something was going on but he had his annual appointment for his thyroid so we put it off hoping it was somehow tied to it. We were hoping for a quick fix but it is in no way tied to the thyroid. We then started setting appointments with various specialists but figured we would start with a internal medicine doctor here is Roosevelt. Last Tuesday we had our appointment, he ran his blood tests and we heard back around 10:00 that night that his muscle enzymes were crazy high (30,000 to be exact) and something was attacking his muscles. That doctor then called Sean's other doctor in Provo - who then at 10:30 at night called us in a complete frantic saying we needed to get to the emergency room ASAP so he didn't go into kidney failure. So we drove to Provo - got to the emergency room at 12:30 am and started a crazy journey. Sean was admitted there and then transferred to the University of Utah Tuesday and they kept him until Friday. He somehow conned them into letting him go even though they wanted him to stay until this Tuesday. We left Friday night and went back out this past Tuesday so they could do a muscle biopsy, so he is now recovering from that. We had another follow up appointment in Roosevelt yesterday, some more tests scheduled for today, and then hopefully a diagnosis with an appointment at the U on Tuesday.

None of the options they have given us are too good, but we still have a crazy amount of hope that it could possibly be something that won't change his lifestyle for forever. They are leaning towards muscular dystrophy, but there are still some other options out there; its pretty sad that we are hoping for an autoimmune disease because there is medication for it - whereas with muscular dystrophy there is nothing they can do. Life can change so fast, we have learned to never take your health for granted. We are so thankful for all of those that have been thinking and praying for him....we really do hope to have some good news next week. I know this is not the best way of informing everyone and/or thanking everyone for the calls but our lives have gone past crazy. Keep him in your thoughts...thank you!!