A busy past couple of weeks...and an update

I just realized its been just about 2 weeks since my last post, sadly nothing too eventful has happened with Sean. He did have his crazy intense biopsy last Thursday. We got to the U at 8:30 am, met with an ultrasound technician and she found a spot in his thigh that she felt would be a good piece of muscle to take - so she put a needle (pretty large needle) in his leg and shot a wire down into the muscle and then we were done there. The needle was only sticking out of his leg about 3 inches, I really thought we would head into surgery pretty quickly - but no, at 11:45 they finally took him back; he only had the needle sticking in him for 3 hours with no pain meds...again, he has been a trooper! So the brain surgeon then went in and removed the muscle - and we were done. We surprisingly heard back on Monday (alot faster than usual) that they did get a piece of muscle that shows the damage - but we still don't know what that means. The best treatment plan is still the IVIg which is STILL denied by our stupid insurance, the doctors office has filed an appeal...Sean's mom and I got an appeal together to send everyplace we could think of (insurance commission, President of BlueCross, etc) we finally got the paperwork pulled together and overnighted yesterday. It makes you feel better trying things, whether it helps or not we can only try! So now that we are in an appeal waiting game the doctor decided to try steroids. Sean took his first treatment this morning, they have ton's of side effects so now we will work through those, but at least its something while we get him approved once again for the treatment that was actually helping. Again, my frusteration with our stupid health insurance cannot be explained...I wake up hoping everyday for an approval, I hate how they are deciding what's best for Sean even though its not. ahhh!

So we will wait some more, some of Sean's muscle has been sent to Washington University. Some of his lymph node from the past surgery has been sent to Los Angeles, and a hospital in Oklahoma has had blood work since the beginning of August and feel that they have found and unknown antibody - so we are waiting to hear some more on that. Basically we have a little bit of Sean strung acrossed the U.S. Lets hope by the next post we have heard back from a few of these places and have our appeal won, we are definately getting less and less picky as to what constitues a good day for us anymore!

Next, I had my baby shower here in Roosevelt on October 24th - it was the cutest shower ever. My friends did an amazing job! I will post pic's later...we had amazing soups, yummy desserts and they even made homemade caramel apples for everyone. It was so cute, and it was such a fun day for me. Mayci got tons of stuff, she is pretty much set. Thanks to everyone that helped and came to my shower - I loved it!

And lastly, Kaylin and I conquered yet another year of the crazy Halloween parade here in Roosevelt. We gave out about 1800 beaded necklaces and 2000 pieces of candy!! it was a solid 2 hours and crazy to say the least. We had a ton of fun, and here is my first posted prego pic - I had ordered a larger shirt that never came...so I made what I had work, although a little snug! we had fun and were definatley exhausted by the end.

So that's that...hoping for an amazing Sean update in the near future. We know that even if we can get the treatment its going to be a slow road - but improvement is improvement and we can't wait for the day we start seeing some. Thanks again for all of the comments and calls, it really does mean alot to both of us!