A positive update...

We went to the doctor this past Tuesday. Sean did another cancer scan (which came back negative) and then we met with our neurologist. It was an eye opening appointment being that the doctor really has no idea how long it will take to respond to the treatments and recover, and to what extent he will recover to...but it was good for us because it gave us a realistic view on what to expect on his road to recovery timeframe. It could take weeks, months or years but Sean and I know that he will get better with treatment and physical therapy. I feel like we have had this deadline in our mind of him being better before the baby comes; it stinks but we realize its most likely not going to happen by then but it will happen with time.

Onto the GOOD news, Sean had his blood drawn and his CK levels are down to 11,000!! this is still crazy high, but Sean' levels have been as high as 37,000 through all this. He seems to always be around 30,000 and after his last IVIg treatment in September they got down to around 26,000 and we were estatic, so to have them at 11,000 is amazing! So the great news is that he IS responding, he had barely gotten his treatment on Friday and the blood test was Tuesday. So we just need to keep on with the treatments and get this thing stopped...and then start rebuilding! he is starting physical therapy today to start stretching muscles which will help - but I can't tell you how great it was to get the news that although muscle's are still breaking down...they are doing so at a much much slower rate. His next appointment and blood test won't be until December 8th, I just hope that they levels continue to go down in the meantime. Sean can't feel the improvement yet, but hopefully he will start noticing little things showing signs of the breakdown stopping. We just continue to pray for recovery, it is so nice to get good news for a first!